Publications

Authors:

Troncone, Alda; Bonfanti, Riccardo; Iafusco, Dario; Rabbone, Ivana; Sabbion, Alberto; Schiaffini, Riccardo; Galderisi, Alfonso; Marigliano, Marco; Rapini, Novella; Rigamonti, Andrea; Tinti, Davide; Vallone, Valeria; Zanfardino, Angela; Boscari, Federico; Del Favero, Simone; Galasso, Silvia; Lanzola, Giordano; Messori, Mirko; Di Palma, Federico; Visentin, Roberto; Calore, Roberta; Leal, Yenny; Magni, Lalo; Losiouk, Eleonora; Chernavvsky, Daniel; Quaglini, Silvana; Cobelli, Claudio; Bruttomesso, Daniela

Title:

Evaluating the Experience of Children With Type 1 Diabetes and Their Parents Taking Part in an Artificial Pancreas Clinical Trial Over Multiple Days in a Diabetes Camp Setting

Year:

2016

Type of item:

Articolo in Rivista

Tipologia ANVUR:

Articolo su rivista

Language:

Inglese

Format:

Elettronico

Referee:

Sì

Name of journal:

Diabetes Care

ISSN of journal:

0149-5992

N° Volume:

39

Number or Folder:

12

Page numbers:

2158-2164

Keyword:

Adult; Camping; Child; Child, Preschool; Diabetes Mellitus, Type 1; Female; Humans; Male; Pancreas, Artificial; Parent-Child Relations; Parents; Patient Acceptance of Health Care; Perception; Surveys and Questionnaires

Short description of contents:

OBJECTIVETo explore the experiences of children with type 1 diabetes and their parents taking part in an artificial pancreas (AP) clinical trial during a 7-day summer camp.RESEARCH DESIGN AND METHODSA semistructured interview, composed of 14 questions based on the Technology Acceptance Model, was conducted at the end of the clinical trial. Participants also completed the Diabetes Treatment Satisfaction Questionnaire (DTSQ, parent version) and the AP Acceptance Questionnaire.RESULTSThirty children, aged 5-9 years, and their parents completed the study. A content analysis of the interviews showed that parents were focused on understanding themechanisms, risks, and benefits of the new device, whereas the children were focused on the novelty of the new system. The parents' main concerns about adopting the new system seemed related to the quality of glucose control. The mean scores of DTSQ subscales indicated general parents' satisfaction (44.24 +/- 5.99, range 32-53) and trustful views of diabetes control provided by the new system (7.8 +/- 2.2, range 3-12). The AP Acceptance Questionnaire revealed that most parents considered the AP easy to use (70.5%), intended to use it long term (94.0%), and felt that it was apt to improve glucose control (67.0%).CONCLUSIONSParticipants manifested a positive attitude toward the AP. Further studies are required to explore participants' perceptions early in the AP development to individualize the new treatment as much as possible, and to tailor it to respond to their needs and values.

Product ID:

117521

Handle IRIS:

11562/1029718

Last Modified:

November 27, 2022

Bibliographic citation:

Troncone, Alda; Bonfanti, Riccardo; Iafusco, Dario; Rabbone, Ivana; Sabbion, Alberto; Schiaffini, Riccardo; Galderisi, Alfonso; Marigliano, Marco; Rapini, Novella; Rigamonti, Andrea; Tinti, Davide; Vallone, Valeria; Zanfardino, Angela; Boscari, Federico; Del Favero, Simone; Galasso, Silvia; Lanzola, Giordano; Messori, Mirko; Di Palma, Federico; Visentin, Roberto; Calore, Roberta; Leal, Yenny; Magni, Lalo; Losiouk, Eleonora; Chernavvsky, Daniel; Quaglini, Silvana; Cobelli, Claudio; Bruttomesso, Daniela, Evaluating the Experience of Children With Type 1 Diabetes and Their Parents Taking Part in an Artificial Pancreas Clinical Trial Over Multiple Days in a Diabetes Camp Setting «Diabetes Care» , vol. 39 , n. 12 , 2016 , pp. 2158-2164

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